Two contradictory goals

#KennedysDisease #SBMA #Success #ExtremeSpasticity #AcceptanceWithoutSurrender

Two contradictory goals I am failing to remove from contradictory stances:

1) Lower, manageable electric bills.

2) Medical necessity to have a very cool environment. (65 degrees.)


1) Lower, manageable electric bills.

Currently, our electric bill hovers around $300. This is up from $125 before I installed a window unit to keep my room cool.

2) My condition, similar to multiple sclerosis, is exacerbated by higher temperatures. I have found that temperatures close to 65 degrees is my best operating temperature.

Additional information:

1) Lower, manageable electric bills.

  • The central HVAC would need to be set into the 60s to get the house at a more livable state for me. This would considerably raise the monthly electric bill. Even with payment averaging, the dramatic rise would continue to be so. In South Louisiana, our winters are like other’s summers.
  • Visitors to the house would need to be provided blankets.
  • Other occupants of the home would need to use electric blankets at night so they could sleep comfortable.

2) Medical necessity to have a very cool environment. (65 degrees.)

  • My muscles contract in temperatures above 68. They contract all the time, but above 68, considerable pain is noted.
  • My ability to breath is impacted. My chest tightens and I feel like I can’t fill my lungs. It is more than a feeling. My vital capacity is lowered, however O2 levels remain between 86% to 97%. It follows the traditional bell-curve, centered on 94% VO2.
  • Functioning outside of my room is problematic. However, if I don’t want to be in a 14’ x 14’ prison, I spend as much time out of my room. Retreating to it only when I can no longer perform at any level.
  • My room is a mess. Largely because when I am in it, my ability is marginalized. I spend most of my time in my room, as my ability is marginalize about 95% of the day.


Experiments have shown decreasing the overall temperature of the house provides me with a greater amount of freedom of mobility and overall quality of life. However, the impact on the electric bill is dramatic. I tried it one time and the bill spiked to almost $400.

How can these two opposing goals be rectified? I’m at a loss.  I ask for comments and suggestions.

In Christ,

Jay C. “Jazzy_J” Theriot

Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on –> see: irc:// You will need an IRC Client such as HexChat to connect.