The Valleys and Peaks Widen

#KennedysDisease #SBMA #Success #ExtremeSpasticity #AcceptanceWithoutSurrender

I have not written in a while as I have been in great pain.  Pain which rivals that which I felt in the beginning.  Through it, a phrase a nurse told me over a year ago echos through my head, “Pain, means you are alive.”

I started taking a product called Myetin about two months ago.  Since thin, I have regained the senses of touch and taste.  I can now feel the wind bristle the hair on my arm.  I can feel the small ridges on the flooring touch the bottoms of my feet.  Yogurt tastes stronger than it has in years.

I can only accredit the return of my senses to the healing of my sensory neurons.  Healing nerve cells on a molecular level is what Myetin is supposed to do.

Myetin is a combination of two elements:  Biotin and NAD.  The combination of the two have marvelous healing properties.  My hair has grown soft.  Very similar to a new born’s.  My nails are thick and strong.  My sensory nerves are gaining feeling.

I have found a routine they go through when they return.  My brain interprets the new signals as pain for several hours.  And, then, it is like my brain remembers they are not foreign signals, but the way it is supposed to be.  The first sensations are severe.  Then it levels out, and the use of that sensory nerve is normalized.

I wonder if that is why I have been in considerable pain.  I am back to feeling like my muscles are tearing themselves from my bone.  For the first time in over a year, almost a year and a half, I feel pain reaching level 9 out of 10.  I had to remember the feelings I assigned to my scale.  Level 9 was when you fell in prayer and meditation, asking God not to give you any more pain.  You feel that there is nothing in the world that rivals what you are suffering through.  Level 10 was where I am no longer lucid. In the early days, I existed at level eight and above.

I wonder if the healing of the sensory nerves are allowing me to feel what is happening in my body.

Everything hurts.  Even my lips.  I can feel pain everywhere.  Pain means you are alive.  I wonder if the nurse was unwittingly correct in her statement beyond wisdom.

I am in great pain because my sensory nerves are coming back.


In Christ,

Jay C. “Jazzy_J” Theriot

Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on –> see: irc:// You will need an IRC Client such as HexChat to connect.