#KennedysDisease #SBMA #Success #ExtremeSpasticity, #AcceptanceWithoutSurrender
My condition has steadily been degrading over the last 2-3 weeks. I figured out why.
The window A/C unit used to cool my room into the 50s slowly died, going unnoticed until death.
The unit was replaced with a stronger one, with a major flaw: The control would not let the unit cool below 64 degrees Fahrenheit. I moved the thermocoupler into a zipper-seal bag and placed them into a cup of warm water. Another modification to this design will transform it into an Alexa-controlled setup. I envision a cup warmer heating a cup of Epson salt with the zipper-seal bag in it. The electricity switched through a smart plug, timing controlled via programming.
The end result was that I feel better this morning than I have in probably two weeks. My muscles are sore from all the elevated contortions I’ve had, but I slept like a rock!
I remain in disbelief at the volatility that this disorder has put my body into, and the extreme conditions it must be put through to exist.
Jay C. “Jazzy_J” Theriot
Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on Freenode.net –> see: irc://irc.freenode.net/ExtremeSpasticity. You will need an IRC Client such as HexChat to connect.