We are now around 380 mcg/day. The increase was yesterday morning at 7 am and I’ve already experienced a spaz attack. However, it was short lived (praise the Lord). However, I am now feeling my muscles tighten like a snare.
It is weird in that, with the increases in medication, I am now feeling more aware. It’s one in the morning and I don’t feel like sleeping. I just took a pain pill because my fingers and toes are contorting with the spasticity, but I don’t feel like sleeping. Before you say, ewwww… I have to say it is kinda funny watching your digits do things they shouldn’t. There isn’t a lot of pain associated with the digits… the pain comes mostly from the lactic acid build up.
I fear I am growing thin in my resolve. The people that are supporting me through social media can’t imagine how much their words mean to me. Today, they kept me going. I was hoping for a couple of good days following the increase. My body thought otherwise. I watched as my condition quickly deteriorated and I just wanted to stop it, but I was powerless. My wife asked me what she could do. I said “nothing.”
We are making progress. I feel decidedly different with this increase. When I am not in an event, I am considerably more mobile. I didn’t even have to walk with a cane, until the event started. Then, I went straight to the chair. Only now, a dozen hours later, am I walking with the cane again. And that was a short event compared to the last two I had, each lasting around 36 hours.
In one of my earlier writings, I alluded to the fact that I have trouble in all necessities of life. This Saturday, I’m having a scan done of my bladder to see if it’s emptying properly. I doubt that it is. When the rest of my body tightens, so does the sphincter that controls the exit to my bladder. I take as long to urinate as normal people take to …. I’ve been drinking cranberry juice almost exclusively. I find it helps considerably.
I wish I could write more. God knows I want to. But, my arms say no.
Thanks for reading,