Prayer Conceived During the Maundy Thursday Vigil

Extinguished —

The eternal light that represented you.  They, nay, we tortured you and tried to wipe you from the face of the Earth and of all history.  But, you were remembered. Our memories made you immortal in the minds of humankind.  But, it was your nature that you be the Alpha and the Omega.  You were here in the Benning.  You are here with us now, and will be with us as a warriour fighting to rid the world of evil for all time, in the end.

Lord, my sins are many.  The contortions and disease of my body is but a small indication of the shame I have.  In your persecution, death and eventual resurrection, you have given all of humanity the gift of forgiveness.

Why do you think we deserve your sacrifice?  We truly have shone that we are unworthy and treacherous servants.

I bow down before my Christ, my Messiah, my warrior for good, and humbly praise your sacrifice, and beg you for mercy.

In Your Name, I pray. Amen.

Be it known, the last 2 weeks have been one of incredible pain.  Just in the last few days, after reporting in to my neurologist, some of my meds were doubled.  I am getting relief from the rigidity in my muscles.  However, as the rigidity recedes, I am feeling the damage done to the individual muscles.  Before, they were all tight.  Now, I can feel the individual strands of muscles that have been damaged.

I am in physical and mental agony, and I am scared. My mind is directing much of its energy to the pain.  I don’t think I can mentally handle much more. My thoughts feel thin.  I don’t know how else to describe it.

I fear that I am headed for another collapse.  The meds are increasing and the body is becoming resistant.  It is likely, that if I can’t break the cycle, that I will overdose at some point, and end back in the ICU.  My wife and I pray there is another way to reset my body without an overdose.

We wait for the DNA test to potentially identify Kennedy’s Disease.  A “yes” means we have a direction, but lots of work.  A “no” means we keep researching.

I want to thank the members of the Kennedy’s Disease Association for their very kind words of support over the last weeks that they have accepted me.  It is marvelous to be a member.

Thanks for reading.

In Christ,

Jay C. “Jazzy_J” Theriot