I am stiff, but functional. Yesterday was a sleep day. I think some of what happens is that during an “event” 1) muscles get strained, 2) high rates of energy are burned, 3) the pain lowers my mental acuity.
I find that after the event has ended, I suffer from muscle fatigue, hence, I sleep most of a 24 hour cycle.
I know my mental acuity is lessened. I find that focusing on a topic is difficult and problem-solving becomes increasingly more difficult. I become more brash than normal. I can attribute that to the additional oral meds I take to lessen the impacts of the event.
I can say that the pain levels are lower. They only made it to 6 and they responded to the oral meds. Prior to the collapse, they would spike to 8 or 9 and the oral meds had a very limited affect on them.
I still find this condition fascinating. Definitely frustrating, but a total enigma. The biggest challenge is the inconsistency of it all. My ability level can change in minutes and affect me for days.
Things I need to do:
- Find my ability limits and stay within them. — this is difficult for me. I have always enjoyed trying to push the envelope. Exceeding my limits is catastrophic.
- Lose weight. I’m not horribly obese, but my concern is as my body further degrades, this will become increasing difficult.
- Focus on the “cans,” and enjoy them.
- Get more Clint Eastwood and Vin Diesel movies.
- Pray, always pray.
Thanks for reading,
Jay C. Theriot