Data Found

I Found data: 1/6th of 1% of the people in the world have spasticity issues. Most of them have a contributing cause. I do not have an obvious cause.  This makes my case quite unique.

Exercise routines involve strength building and stretching (just as I figured).

I found this:  http://www.spasticityalliance.org/ which doesn’t give a bunch of hope.  I find they are mostly negative stories and the writers express considerable amounts of frustration both with themselves and the ITB Pump.

The general consensus is that the ITB Pump is not the end-all-do-all it desires to be.  Finding the fine line between spasms and functionality is a tricky one, as we have experienced personally.

I think that my “New Normal” is a life that I must be aware of my limitations, and live within them.  When I detect an issue, it will have to be administered to quickly.

Stretching, exercise and massage will have to be included in my regime.  On a personal note, I find it ironic that I will require massage.  Years ago, I hated the thought of anyone touching me because it hurt so bad.  That was all part of the spasticity.

I don’t know how long my spasticity has been building.  But, it seems the more I learn, the further I push the date back.

I’ve been walking with a cane off and on at work for almost 2 1/2 years.  I’ve had prostate issues since 2013.  All of these issues, and many more, were due to my spasticity.  I can say that definitive now because with the collapse, a bunch of issues that I have  been having are gone.  I have learned a tell-tale sign is the stiffness of my forearms and hands.  When they hurt, I use the pain as a bellwether.

My search for information and remediation continues.

Thanks for reading,

Jay C. Theriot