Bored? — Warning — Whining Follows
OK. I should be happy. We are getting this disorder under some measure of management. However, I’m not. I’m going to follow this under “got an inch, want a mile.”
I am driving short distances. I attended a 2-hour seminar last night on Digital Marketing. It was phenomenal, not only the information, but being able to be free. There, of course, were additional meds involved, but the result is that I made it. I survived it. I took notes and contributed some bits of information to the seminar.
I’m involved in publicizing the effects of Kennedy’s Disease to a global audience. That is cool. I’m gaining global recognition for my frankness and my ability to get the word out. Great.
I’ve contributed to beta-testing of a release of AmiKit and have received recognition in the credits for working with a global team to pick out bugs and work to validate the release. Wonderful.
So why am I so …. blah, or meh?
I want to do things like I used to do. I can’t and likely never will.
My loving wife says I got a taste of freedom and it triggered these emotions. I say that I got a taste of what was, and I want more and I can’t have it.
I love digital communications. I’ve been involved with them directly since 1992 and indirectly several years before. My first webpage was published in 1994/5 (I can’t remember exactly when I learned HTML.) My first time on a chat client was during the Oklahoma City Bombing, April 19th, 1995.
What I want is interaction with people, outside of my home and to be able to do things for them.
I was working on a fireworks display for my friends in another city. I can’t do that now. I am hopeful that I may be able to travel in the future, but I can’t do that now. At this point, I feel like Veruca Salt, shouting “I want it now!”
I should be ashamed of myself. But, I’m not. Not yet. I want to do something physical of merit. And, I can’t
O.K., I’m going to try to stop whining and get on with life.
What I hope people understand, is that a disease like #KennedysDisease doesn’t just affect you medically. There are financial, physical, social as well as emotional issues to be addressed. I know, I should heed my own words in the article “Why Not to Despair” and I will. I’m going to read them now.
Hopefully, I can teach me something.
Jay C. “Jazzy_J” Theriot
Jay C. Theriot can usually be found as “Jazzy_J” on the IRC Channel #ExtremeSpasticity on Freenode.net –> see: irc://irc.freenode.net/ExtremeSpasticity You will need an IRC Client such as HexChat to connect.