There are three approvals to be received before having a DNA test for Kennedy’s Disease (SBMA). The doctor, the insurance company and the lab.
The doctor jumped on-board immediately. He used the templated request from the lab performing the test.
I just got the letter in the mail from the insurance company saying they agree that it is a medical necessity!
I just called my wife and hyperventilated.
We are a huge step closer to getting a yes/no answer.
I do have to say, as a mathematician, the odds of me, or anyone, developing SBMA is next to impossible. However, it is still possible.
I have failed test for many other diseases and mutations. Yet, my disease still progresses. I almost pray for a “yes.” But, the receipt of a “yes” means my progeny, and possibly my nephews, are in danger. It is definitely a double-edged sword.
Man, I feel like a load has been lifted.
One more step. One more step.
Jay C. “Jazzy_J” Theriot