I thought I was doing well. I slept all night, took my meds at 5 am, then slept until 10 am. I woke up to fresh-brewed coffee made by my daughter. I called her an angel.
Woke the wife up. Got ready, went to church. Talked to people. I set the recorder in action. I sat down for mass.
About 1/4 hour into the mass, I started trembling. About 1/2 hour into mass we had to leave because I was spasming so bad my tearducts and my sinuses had gotten into it.
I thought we had crossed a bridge and were on the way down from the 2 week spastic event. Not only are we not down. We are at the worst level we have been at.
I feel like I’ve undone 6 months of work.
I’m waiting for some major meds to kick in, then I’ll be asleep until they stop working.