It’s been ten days since my last adjustment and we have had some ups and downs, but I think we are starting to learn how to react effectively.
One of my issues is that I have sleep apnea and have to sleep with a CPAP. Baclofen has issues with people that have apnea. It can easily stop them from breathing. The problem lies with the fact that when you have apnea, parts of your brain get conditioned to expect a high level of carbon dioxide. It is this conditioning, not the high level of carbon dioxide that causes the issue.
I have been wearing my CPAP religiously and I think I’m making strides in reconditioning my brain to expect lower levels of carbon dioxide because the Baclofen is having a greater positive effect and less tragic side-effects. However, as my wife can attest, if I take oral Baclofen an then sleep without my CPAP, bad things happen. She had considerable amount of trouble when to rouse me when I forgot to wear my CPAP for a nap. It was scary.
In short, we have been reducing the incredibly strong spasms to rigidity, cramps, twitches and vibrations. Occasionally, there is considerable pain, but these occasions are getting shorter. I find they come more often, but our tools are becoming more effective against them.
Yesterday, my wife and I were talking on the phone. I had started having symptoms before she called and we had to end the conversation because I couldn’t stop twitching. My muscles were tightening. Cramps were starting. I took an oral Baclofen. within 45 minutes the twitching and cramping had slowed to a minimum. After two hours, my muscles relaxed and there were no more twitches. My muscle were sore from the damage, but I’m getting used to living with that.
I wasn’t able to do much of anything yesterday as while all this is going on, coordination suffers. At one point, I was having trouble rolling the scroll on my mouse. At another time, I was having trouble putting a cup in the dishwasher properly. I just couldn’t get the cup to go over the spines where I wanted it. While all of this is going on, I usually laugh. My body does really funny things. My friends always knew I was spastic. We have been laughing about this since I was a kid at Lacache, and maybe beyond. I see no reason to stop laughing at my twitches and lack of coordination.
It helps the days go by.
In about 2 hours, I’m going to watch a lunar eclipse with my daughter. If I can manage, I’m going to take some photos of it.
It is in these times, spending time with my children, that I live. Not in the times that I can’t function enough to fix my own cup of coffee. You remember the good, and analyze the bad.
Jay C. “Jazzy_J” Theriot