Without a diagnosis, no formal tracking methods can be named. However, I showed my tracking that I’m doing and it was judged that I was covering several key indicators and to keep doing it. Below is the headers for the data points I’m collecting:
|Date and Time||From BP Cuff||From Pulse-Ox||Spasticity
5 is Norm
5 is Norm
1 – 10
|Leg Pain 1 – 10||Torso Pain 1 – 5||Self Evaluation|
I look at all the information that I have compiled and I am amazed at the problems that are going on in my body. All because my electrical system is not functioning properly. Very, very weird. Writing about it and getting on paper has proven beneficial many times over. The number of views of this blog as of this morning was 1714 total views. I know people are watching and are concerned at some level. Prior to blogging, being shunned by my family, I felt completely alone. Raw numbers don’t lie. Every time one of you reads an article of mine, it is incontrovertible to me that I count, albeit small, I do matter. My ruinous body can do what it wants. I will not be defeated.
Today’s doctor visit was no less than the 2nd time this blog has had an impact on my treatment success. The first was with the Nurse in the CCU. God Bless her. She was beyond an angel. I’m sure there are many others, small ones. The obvious continuing benefit is that my thoughts and concerns are organized when I meet with my doctors. Additionally, the catharsis it gives me is tremendous. Today I was told I was at an increased level of risk for a stroke, and that I was a medical anomaly and I’m like, “another day in the life.” No skin off my nose. I’m just taking it in stride.