From mid-day yesterday until now, there was an increase in my spasticity. It was so intense at some point that just touching things with my fingers hurt. Any move I make causes at least level 6 pain. I feel like I’m a “Tin Man” again. I’m going in to Gervais on Monday to get an increase in the ITB. I don’t know that anything I do makes any difference. I tried working out and I think that may have contributed to my situation.
I need to get smart and understand my disease. I’m failing. It is really a quality-of-life requirement.
My hands are so tight that just making a fist pops all my joints in my hand.
I am handling the situation better mentally. I understand this is the way it is going to be and I have severe limitations.
I need to position myself to where I can do things and be productive, but use voice recognition to accomplish the tasks. I need to do some code writing but I have a system that is working well enough to translate the spoken word into program code. If I could pull that off, then I could really do things with my web-site. *nix has a program called Simon that shows promise. I tried setting it up earlier, but I was in too much pain to focus enough to follow the directions. I think I’m going to give it a go again.
Microsoft VR sucks. Google on my Android phone is the best. But, I need a desktop system. I can’t code on my cell. (An Android tablet could fit the bill, but I’m not willing to spend the dough on one that could do everything I need it to.)
There are so many things I wanted to do. I can’t see a path to being able to physically do them anymore. I feel like my life is over and I’m just waiting to die. The irony is that at 49, I’m expected to add another 30-40 years onto that number. I’ve always have had a 5-year plan. Now, I can’t plan for later in the day.