Many minor spasms and every now and then a major one. Started about noon yesterday with a major spasm in my right leg that strained muscles on the right side of my body. I was able to get some rest last night, but woke up this morning with tremors and spasms. I’m using the chair because my coordination is limited, to say the least.
To use the words of Michael J. Fox, the suckitude rating is high. I think the man is becoming my new mentor. I always liked him and wanted to be like him in my younger years, but now I hate that he and I have too much in common.
I did receive my Pilot Fountain pen in the mail yesterday. As I theorized, not needing to push down on the pen really reduces the pain associated with writing. I think fountain pens are the way that I need to go. I’ve ordered a screw converter and a bottle of ink.
I hope my wife buys me more of these. I would like a variety. I don’t do that much hand writing, but I do like pens.
Kathy purchased me some copper “Moscow Mule” cups in hopes that I could use them to drink coffee out of. However, copper is non-insulative and the heat burns my lips. But, they make a great beer stein. I feel like a royal drinking beer out of them.
The phalanges of my hand from my wrists to the tips of my fingers swell incredibly and change size through the day. I didn’t notice how much until Kathy gave me my new wedding band. It changes fingers throughout the day and there are sometimes that none of my fingers fit. I visit the Rheumatologist on next Monday. I’ll be interested to hear what he has to say.
I’ve got to call Liberty Mutual back tomorrow. Thursday they called and left a message. I didn’t notice it until late Thursday and Friday was not good. Well, things have not gotten better. So, I going to just bite the bullet and call them. They want an update on my progression through the treatment plan. I laugh. Plan? Every day is a new day. My plan is to make it to tomorrow. Only with God’s Grace am I able to make it.
We have contacted a handyman to make small modifications to the house so that my independence and range may be increased. I’m glad and sad at the same time. On the one hand, it will afford me the ability to spend time on the deck and in the back yard. On the other, it is a commitment to accept long-term disability.
How did I get here? I don’t know. I try to focus going forward, but every now and then you have to wonder: “Why?” There are no answers that are evident. I would like to say that I have MS but limited to my spine. My brain is fine. But, I don’t think that is a possible diagnosis.
Truth of the matter, I fear becoming like Stephen Hawking. A little contorted man in a chair that has tremendous ideas and no way of making them reality. He is a greater person than I. His forte is theoretical physics. Because of this, he will never have to physically prove his theories. He can do it with thought. I’m not so lucky. My big task is trying to figure out how to close a door behind me. I’m not currently able to drive. I did pick Hali up on Friday, but it took tremendous effort to keep it all together. I very comfortable in my car. I think it is likely the best location for me. But, going somewhere and doing something is traumatic. Very diabolical.
I think I’ve ranted enough for the day.
Thanks for reading and God Bless,
Jay C. Theriot