When you have a neuro-muscular disorder, using a Shiatsu device to self-massage is as close to Nirvana as you can get.
Today, was not good on the medical scale, but through the use of modern chemistry, we were able to scavenge parts of the day.
I didn’t make it through breakfast. When we were at the table ordering, I grabbed the menu and saw that it was trembling. My super wife ordered breakfast for us. We ate and returned to the B&B, where I took the cocktail. She left to retrieve her son and she gave me about 2 or so hours to rest. We went to lunch and had a marvelous burger.
The medication was working so we were able to make it to Melrose plantation where the late artist Clementine Hunter used to live and paint. We then made it to the former location of Kate Chopin’s home. The place burned in 2008, but there were still some out-buildings and interesting artifacts. I would assume what we did was trespass, but we were able to get a good bit of photos of the remains.
We returned to the B&B where I took the cocktail again, a second time in one day, to alleviate the building pain and hopefully stop the progression of spasms. I slept, until about 1 am, as usual.
As I write this, my body is a bundle of pain. I just used a Shiatsu device to massage my neck. The device is beyond wonderful. But, as the disease is determined, as soon as the 15 minutes is up, the muscle pain returns. But, for those 15 minutes, oh my dear, you can put your mind somewhere else!
We have to retrieve my daughter from the airport mid-day today. I don’t know how we are going to manage that. I can envision staying in the car as my wife and step-son get her and her luggage from the terminal.
This disease is exhausting. I am fatigued. All my skeletal muscles feel like they are on fire. I want my puppies and my bed to rest in. Vacation was incredible, but I fear, it is time for it to end so I can get back to my cocoon and heal for a while.
My prayer for the new year will be one of acceptance and learning how to live within the confines of this disease.
Thank you for reading, and God Bless,
Jay C. “Jazzy_J” Theriot