I think I may have a cold. The funny thing is that prior to the onset of the spasticity, I could tell I was getting sick by body aches. Now, my body aches 24/7…. How am I supposed to decide if I have a cold or not?!
To be honest, I’m pretty certain I have a cold. I’ve been taking decongestants for about 36 hours. If I miss a does, I get congested really fast. I don’t think it’s time to visit a doctor yet, but it is kinda funny that I’m having trouble determining this.
I was able to attend Mass and produce a recording of it yesterday. Within hours of it’s release, 13 people streamed the video from Youtube. While this number doesn’t sound significant, this does mean that there are people that were really waiting for that to be released.
Being able to produce a product that someone else desired has given me a feeling of worth.
These are the steps we had to take for me to make it through Mass:
- Took Lortab at 9 am, then showered.
- Kathy helped me walk to the lectern and back to the pew.
- After reading, when I returned to the pew, I took Horizant and oral Baclofen. I was shaking pretty bad.
- When I got back to the car, after Mass and fellowship, I took the Zanaflex. Minor spasms, tremors had started.
- About 1 pm, I had a full-on spasm, mainly on the left side of my body.
- Slept the afternoon.
- Felt really uncertain about myself, but my wife and I were able to walk around the neighborhood, albeit slowly, and loosen up my muscles.
The pain and soreness resulting from attending Mass was well worth the spiritual boost from attending and producing the video for those to enjoy that could not be there.
An additional note is that my wife and I are learning to deal with my disease enough to where I can do something. My mother-in-law and former military buddies continue to be my keel. One particular buddy reminded me earlier in the week to take care of myself so that I would be strong enough to do the reading for Sunday.
The support matrix that has evolved is incredible. One of my sisters commented that I put to much value in the opinion of my siblings and that I should work to accept that. I’ve come a bit of the way in acceptance. I still need work in this area.
Thanks, and God Bless,
Jay C. Theriot